Sunday June 16 Happy Father's Day ! Day 51
Happy Father's Day to all of you ! I wish Scotty's day had been a bit better but we knew there would be ups and downs as we go. I will start with Friday and give a day to day update. Friday Scotty arrived home from the hospital around 2:15. The discharge was not an easy process and they sent Deborah and Scotty home with very LITTLE information. Obviously the organizers for discharge were on vacation and did not leave any instructions for those who were in charge ! So.... they left the hospital and their first stop was the drug store. Deborah hands them the folder and the pharmacy tech looks at Deborah and says "you do realize there are 17 prescriptions here right ?" Deborah just looks at the guy with her smile and shakes her head and responds well yeah ! Not sure what he was thinking as if Deborah had a choice between them or what....
So off they go home and Deborah would later return to pick up the meds. They arrive home safely and Scotty was able to maneuver himself successively in the house. He was very glad to be back home and in his own surroundings. He sat outside briefly and tried out different chairs in the house. He was very excited to be home. Later in the evening he was able to go upstairs and into the room he would now be sleeping in.
The night was not the best. We had gotten him a new matress for the day bed to sleep in but it was not exactly positioned the best. So his first night at home was not a very restful one. I also think he was still very excited.
On Saturday the on call Home Health Care Nurse comes out to help them understand all the meds and to go over a few things with them to get them started. We think he will receive a visit 3 times a week from a nurse from this organization. We are really not sure at this time. One of those details they were suppose to learn at discharge that got left off! I go over with a Strawberry milkshake in hand and start trying to organize his medicines.( Deborah was dealing with a Noah breakdown so I was trying to help with Scotty)I get baskets and cards to label the medications into categories. I have since then made a drug chart for him so they can make sure he gets the right doses at the right times. That was a huge chore ! I am still working on it to tweak it. Scotty was up most of the day and he did not rest much at all. Which leads us into Sunday......
Sunday June 16..... he has not made it out of bed today. His legs are hurting and he is extremely tired. We are hoping this is the result of him over doing and that he will be back on his feet tomorrow. Bobby and I grilled steaks for fathers day at their house and he did manage to eat a few bites. He generally loves steak but had no appetite.
Scotty has an appointment with Dr. Doty, a lung specialist on Tuesday morning in Charlotte. There seems to be some concern about the fluid that still remains in one of his lungs. They will do a chest x-ray and hopefully find out what is going on. He will have an appointment with the ortho-oncologist, Dr.Patt and his now assigned medical oncologist , Dr. Sumrall on June 27th.
Noah will begin Summer school tomorrow for 3 weeks at Saluda Trail from 9 - 12. We really hope he likes the program. This has not been a good weekend for him and the adjustments that are having to be made in his home have affected him greatly.
Please continue to pray for Scotty to get stronger and bounce back from this set back. Pray for Deborah to get some well needed sleep and rest and pray for Noah.
Sunday, June 16, 2013
Wednesday, June 12, 2013
"Oh Happy Day "
Wednesday June 12, 2013 Day 47
Scotty called me yesterday to give me an update on his progress in PT for the day. I received the call around 4:00 which was a bit early but I thought nothing of the fact he was calling. Deborah happened to be calling me at the same time but I answered Scotty's first. With both of them calling at the same time I was a little apprehensive to answer but I knew I had to answer. SO I looked at Kristin and said a brief prayer and hit the answer button. Scotty began to speak in a very low voice with a quite depressing tone. " I have something to tell you " My stomach starts to churn and then the words began to come out " hey sister in law guess who walked 60 feet today unassisted , sat down and walked 60 more ?" and he started to laugh and speak with excitement !! "THE STAR STUDENT" Tears came to my eyes as he proceeded to tell me about the experience and how all the PT people were cheering, clapping, and giving high fives. And at that moment one of my most favorite songs began to play in my mind " Oh Happy Day, Oh Happy Day when Jesus walked, Oh Happy Day........and I have been singing it all night long. ......(Remember he was told he only had a 50/50 chance of ever sitting or walking again)So now this leads me to the next most exciting news to report.
SCOTTY IS COMING HOME FRIDAY !!! Yes you read that correctly. He will be coming home Friday ! I am not sure of the exact time of discharge but as soon as I know I will let you know! There is a lot to be done between now and Friday and we are all anxious for this day to come. And, for this to happen , Deborah had to go to Patient Care School today from 9:00 am until 3:00 at the Rehab center. She will learn the do's and dont's, the have's and have nots, and what things Scotty will need to make sure he is comfortable at home. I wish I could be there to watch my dear sister in class because before the day is over they probably will have changed the curriculum or may even offer her a job ! :) They have all grown to love her sense of humor and positive perspective she has placed on this entire situation. One time early on when Scotty had only been in rehab several days a nurse was in the room and he needed to use the bathroom and he told Deborah. With a serious tone and look , Deborah said well just get up and go if you need to " The look on the nurse's face and Scotty's was priceless ! Of course then she went into her only Deborah kind of laugh! It was so funny. So I can only imagine how school will be for the both of them today.
When he is discharged on Friday they will have all the appointments made with the medical oncologist, the orthopedic oncologist, and a home health care assignment. He must continue his PT at home so he can continue to build his strength for what is yet to come. He will also have to secure a medical doctor in town since he doesn't have one. Remember I posted in my first blog this is a man who never went to a doctor. He will tell you I went from no doctors to a "team" of doctors. Don't ever do this and go for your yearly check ups ! And if your back hurts go get it checked !!
My daily devotional that I do from the Joyce Meyer series was so fitting for today. They are sent to me on my I Phone. The scripture was Psalm 10 verses 1 - 5.
Psalms 100 A psalm. For giving thanks.
1 Shout for joy to the Lord, all the earth. 2 Worship the Lord with gladness; come before him with joyful songs.
3 Know that the Lord is God. It is he who made us, and we are his;we are his people, the sheep of his pasture.
4 Enter his gates with thanksgiving and his courts with praise; give thanks to him and praise his name.
5 For the Lord is good and his love endures forever; his faithfulness continues through all generations.
We are so thankful for this victory in Scotty's journey. We know there is still a long road ahead of us in fighting this disease but for now we are celebrating his coming home and his ability to walk.
Please continue to pray for Scotty as he transitions home, for Deborah as she gains knowledge and understanding of what he needs, and for Noah as he will now be exposed to a whole new way of living for his Dad as well as for the entire family. Please continue to pray for the doctors to make the right chemo decisions and for Scotty's ability to when the fight against the cancer !
I will be returning home from my beach project today where I was able to receive some rest and relaxation while scheduling and supervising some repair work. Safe travels for everyone this summer season !!!
Scotty called me yesterday to give me an update on his progress in PT for the day. I received the call around 4:00 which was a bit early but I thought nothing of the fact he was calling. Deborah happened to be calling me at the same time but I answered Scotty's first. With both of them calling at the same time I was a little apprehensive to answer but I knew I had to answer. SO I looked at Kristin and said a brief prayer and hit the answer button. Scotty began to speak in a very low voice with a quite depressing tone. " I have something to tell you " My stomach starts to churn and then the words began to come out " hey sister in law guess who walked 60 feet today unassisted , sat down and walked 60 more ?" and he started to laugh and speak with excitement !! "THE STAR STUDENT" Tears came to my eyes as he proceeded to tell me about the experience and how all the PT people were cheering, clapping, and giving high fives. And at that moment one of my most favorite songs began to play in my mind " Oh Happy Day, Oh Happy Day when Jesus walked, Oh Happy Day........and I have been singing it all night long. ......(Remember he was told he only had a 50/50 chance of ever sitting or walking again)So now this leads me to the next most exciting news to report.
SCOTTY IS COMING HOME FRIDAY !!! Yes you read that correctly. He will be coming home Friday ! I am not sure of the exact time of discharge but as soon as I know I will let you know! There is a lot to be done between now and Friday and we are all anxious for this day to come. And, for this to happen , Deborah had to go to Patient Care School today from 9:00 am until 3:00 at the Rehab center. She will learn the do's and dont's, the have's and have nots, and what things Scotty will need to make sure he is comfortable at home. I wish I could be there to watch my dear sister in class because before the day is over they probably will have changed the curriculum or may even offer her a job ! :) They have all grown to love her sense of humor and positive perspective she has placed on this entire situation. One time early on when Scotty had only been in rehab several days a nurse was in the room and he needed to use the bathroom and he told Deborah. With a serious tone and look , Deborah said well just get up and go if you need to " The look on the nurse's face and Scotty's was priceless ! Of course then she went into her only Deborah kind of laugh! It was so funny. So I can only imagine how school will be for the both of them today.
When he is discharged on Friday they will have all the appointments made with the medical oncologist, the orthopedic oncologist, and a home health care assignment. He must continue his PT at home so he can continue to build his strength for what is yet to come. He will also have to secure a medical doctor in town since he doesn't have one. Remember I posted in my first blog this is a man who never went to a doctor. He will tell you I went from no doctors to a "team" of doctors. Don't ever do this and go for your yearly check ups ! And if your back hurts go get it checked !!
My daily devotional that I do from the Joyce Meyer series was so fitting for today. They are sent to me on my I Phone. The scripture was Psalm 10 verses 1 - 5.
Psalms 100 A psalm. For giving thanks.
1 Shout for joy to the Lord, all the earth. 2 Worship the Lord with gladness; come before him with joyful songs.
3 Know that the Lord is God. It is he who made us, and we are his;we are his people, the sheep of his pasture.
4 Enter his gates with thanksgiving and his courts with praise; give thanks to him and praise his name.
5 For the Lord is good and his love endures forever; his faithfulness continues through all generations.
We are so thankful for this victory in Scotty's journey. We know there is still a long road ahead of us in fighting this disease but for now we are celebrating his coming home and his ability to walk.
Please continue to pray for Scotty as he transitions home, for Deborah as she gains knowledge and understanding of what he needs, and for Noah as he will now be exposed to a whole new way of living for his Dad as well as for the entire family. Please continue to pray for the doctors to make the right chemo decisions and for Scotty's ability to when the fight against the cancer !
I will be returning home from my beach project today where I was able to receive some rest and relaxation while scheduling and supervising some repair work. Safe travels for everyone this summer season !!!
Sunday, June 9, 2013
"Star Student "
Scotty is a star student at his rehab center ! The goals they like for their patients to accomplish before being released he has superseded ! They want you to walk 54 feet with a walker and he accomplished 184 feet ! In the wheelchair they want you to cover 500 ft and he has gone 1200 ft ! So we are excited for these gains. He has been in the rehab kitchen practicing how to make coffee and tea from a standing position with the walker. Tomorrow he will start tackling STEPS ! Scotty continues to work out in the gym regaining his strength in his upper and lower body. The pneumonia caused a bit of a set back with his energy and strength but as you can see he has made great improvements. He still receives an antibiotic drip 2 times a day and oral antibiotics as well. He has a pain patch for the the back pain as well as oral medications. He was experiencing some pain down his left leg earlier in the week and we know that is because he has been letting the left side do more work to compensate for the right side. His appetite is still not there but as he told me " I eat because I know I need to but nothing has a taste" But the strawberry milkshakes with no whip creme are still the best !!! So we all try to bring him one when we visit.The doctor at the rehab center expects Scotty to be there through the 14th if not longer. We will soon start preparing for his dismissal time and should know some needed items soon. Several of you have asked but right now all things needed will depend on how far he comes in his ability to maneuver in the house. So we shall wait.
Deborah, Noah and Grandma went to visit Scotty yesterday and when they arrived he was sitting in his chair. Noah walked in and looked at his Dad and said "WOW Dad you sure are skinny ! " It was good for Noah to see Scotty up. We know Noah doesn't express his feelings as easy as others but we do know he realizes Scotty has been very sick. Yesterday was Deborah and Scotty's 28th wedding anniversary. So hard to believe they have been married this long ! Scotty has been a precious part of our family and we have had so many laughs with him I could write a book! I bet some of you didn't know Scotty was a neat freak. When we go eat at their house you better not leave your plate alone ! He will grab it and throw it away before you blink an eye. Or even before you finish your last bite.
Noah will be attending the extended school year program and it will start June 17 for 13 days from 9:00am - 12 each day. So we are all going to try and jockey some schedules this week to help with Noah so Deborah can get to the hospital each morning. That is a complicated situation itself trying to work around everyone's summer schedule. But it will work out. Deborah received a phone call from her former Principal and that was a pleasant surprise for her. The continued support and prayers from family, friends, colleagues, and neighbors is such a blessing ! God has truly surrounded our family with love, strength and guidance throughout this entire journey.
Isaiah 43: 2 " When you pass through the waters I will be with you; and when you pass through the rivers they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. vs 5 Do not be afraid, for I am with you;.....
Please continue to pray for Scotty to regain enough strength to come home so he can begin his chemo treatments to fight the cancer, Deborah's safety traveling and strength to handle all the changes and situations that are occurring, Noah as he makes a school change and continues to adjust to the changes in his life, and for all of us who are providing additional support for Deborah and Scotty.
Tuesday, June 4, 2013
The Official Diagnosis Is Made
Tuesday, June 4, 2013 Day 39...... I know some of you are wondering why my post are not everyday...well between teaching, working at Knights Baseball Stadium, visiting Scotty and running my own house I have decided to blog as things change or when we have new information. Scotty has been increasing his time in the wheel chair and walking with a walker. He even made coffee in the rehab kitchen yesterday. Deborah said he seemed very tired today and was enjoying a few more naps. The oncologist Dr. Rachael did stop by today and told Deborah and Scotty that all the results are in from the biopsy and Scotty has Hepatocellular Carcinoma. This is cancer that does originate in the liver as a result of the Hepatitis C and his has metastasized to the L4 in the spine. The team will meet and decide what treatment they will do for this. The Doctor actually told Deborah to look up the term and read the information about this type of cancer. Personally I really don't like to read from the internet but the doctor seemed okay with it but I am not sure which site. So I just googled it. The medical Doctor called Deborah later this afternoon to tell her that Scotty has pneumonia again. We knew he seemed more congested these past few days and they had him using a nebulizer and another breathing treatment each hour. They were starting him on antibiotics. He continues not to have an appetite and we try to find things that might seem appealing to him. Strawberry milkshakes still seem to be a big hit.
Noah will finish school this Thursday and will be allowed to attend the extended school program for a week. He participated in his school program last Friday and will attend 5th grade graduation at his school. It is hard to believe he will be moving to middle school. On his way to school the other day he told Deborah he had a dream his dad was home and he was so happy. He said he woke up and checked their room and realized he wasn't there. He said I miss my Dad! How sweet that was.He had a surprise visit from his former First grade teacher Phyllis Payden-Adams and her husband Alonza. They came and got Noah and a neighbor and took them for an outing. He had a great time getting out of the house.
Deborah continues to make her trips daily to Charlotte and did go see Noah in his program. The meals she is receiving are such a big help and has been a great support for her. She also loves the visits from each one who brings the meals. She had a visit today in Charlotte from two colleagues Marsha and Robyn. She was able to go to lunch with them and that was so nice for her to get away from the hospital setting and have some adult conversation and support.
Please continue to pray for Scotty, the doctors, Deborah, Noah and the rest of us as we continue to travel through this journey.
Noah will finish school this Thursday and will be allowed to attend the extended school program for a week. He participated in his school program last Friday and will attend 5th grade graduation at his school. It is hard to believe he will be moving to middle school. On his way to school the other day he told Deborah he had a dream his dad was home and he was so happy. He said he woke up and checked their room and realized he wasn't there. He said I miss my Dad! How sweet that was.He had a surprise visit from his former First grade teacher Phyllis Payden-Adams and her husband Alonza. They came and got Noah and a neighbor and took them for an outing. He had a great time getting out of the house.
Deborah continues to make her trips daily to Charlotte and did go see Noah in his program. The meals she is receiving are such a big help and has been a great support for her. She also loves the visits from each one who brings the meals. She had a visit today in Charlotte from two colleagues Marsha and Robyn. She was able to go to lunch with them and that was so nice for her to get away from the hospital setting and have some adult conversation and support.
Please continue to pray for Scotty, the doctors, Deborah, Noah and the rest of us as we continue to travel through this journey.
Thursday, May 30, 2013
Making Progress
Thursday May 30th, 2013 Day 34.....
Scotty is continuing to improve on a day by day basis. He goes to the gym each day in the wheel chair. He has been walking between the bars and has now progressed to walking some steps with a walker. Today he set a personal best for walking with a walker down the hall and back 2 times. He is still having issues with his taste buds but has found a few things that taste really good. He enjoys a strawberry shake and a particular type of Peppridge Farm Cookie. He was able to shower on Monday and that was the best part of the day.
The doctors still have not determined the origin of the cancer. The liver biopsy was inconclusive in regards to what type of cancer it is. It just showed the 2 lesions were cancer. So the mystery continues. He is getting better with pain management with the L4 in his spine. There is still pain but they are trying to keep it under control at a low level. At this time no decisions have been made about chemo. We know it is in the future but the doctors have not told us anything. he is still projected to be released from rehab on June 19th.
Noah has learned how to face time Scotty using his IPod touch. This has helped him with the separation from Scotty. He even face timed me the other morning at 2:21 am ! Yes I said am. He wanted to see if it worked in the dark ! We have all gotten a big laugh at that. he had to have 4 teeth pulled the other day and seemed to do okay. His cousin Kristin (my daughter) enjoyed a movie date with him on Monday and he will be in his school play tomorrow. ( We hope he will do it) He still is having issues sleeping and he misses Scotty.
Deborah continues her routine of dropping off Noah and heading up 77 to the hospital each day. She has started taking the weekends off to give her some time at home.
I cannot express enough our deep appreciation for everything everyone has been doing for our family. The meals, gift cards, cards, phone calls, emails, and especially the visits to see Scotty have been so great. We cannot thank you enough. As I close tonight I will share this verse with you that has been a comfort to me during this time.
2Samuel 22:19 "They confronted me in the day of my disaster, but the Lord was my support."
We have felt the Lord's support during this journey and we continue to draw our strength form our Lord and Savior !
Please continue to pray for Scotty to continue to improve with his walking and for Deborah as she travels back and forth to the hospital. Continue to pray for the doctors as they try to decide what treatment is necessary for Scotty. Please pray that Noah will start sleeping better at night and that he gains some understanding about what is going on in his life right now. Changes are very hard for him.
Scotty is continuing to improve on a day by day basis. He goes to the gym each day in the wheel chair. He has been walking between the bars and has now progressed to walking some steps with a walker. Today he set a personal best for walking with a walker down the hall and back 2 times. He is still having issues with his taste buds but has found a few things that taste really good. He enjoys a strawberry shake and a particular type of Peppridge Farm Cookie. He was able to shower on Monday and that was the best part of the day.
The doctors still have not determined the origin of the cancer. The liver biopsy was inconclusive in regards to what type of cancer it is. It just showed the 2 lesions were cancer. So the mystery continues. He is getting better with pain management with the L4 in his spine. There is still pain but they are trying to keep it under control at a low level. At this time no decisions have been made about chemo. We know it is in the future but the doctors have not told us anything. he is still projected to be released from rehab on June 19th.
Noah has learned how to face time Scotty using his IPod touch. This has helped him with the separation from Scotty. He even face timed me the other morning at 2:21 am ! Yes I said am. He wanted to see if it worked in the dark ! We have all gotten a big laugh at that. he had to have 4 teeth pulled the other day and seemed to do okay. His cousin Kristin (my daughter) enjoyed a movie date with him on Monday and he will be in his school play tomorrow. ( We hope he will do it) He still is having issues sleeping and he misses Scotty.
Deborah continues her routine of dropping off Noah and heading up 77 to the hospital each day. She has started taking the weekends off to give her some time at home.
I cannot express enough our deep appreciation for everything everyone has been doing for our family. The meals, gift cards, cards, phone calls, emails, and especially the visits to see Scotty have been so great. We cannot thank you enough. As I close tonight I will share this verse with you that has been a comfort to me during this time.
2Samuel 22:19 "They confronted me in the day of my disaster, but the Lord was my support."
We have felt the Lord's support during this journey and we continue to draw our strength form our Lord and Savior !
Please continue to pray for Scotty to continue to improve with his walking and for Deborah as she travels back and forth to the hospital. Continue to pray for the doctors as they try to decide what treatment is necessary for Scotty. Please pray that Noah will start sleeping better at night and that he gains some understanding about what is going on in his life right now. Changes are very hard for him.
Friday, May 24, 2013
" Working Out In The Gym "
Friday May 24th Day 28 Scotty was able to go to the gym today in his wheel chair . He spent 1 hour and 30 minutes in his chair. He also stood for 10 minutes and took a few steps. I have attached a picture of him working out in the gym today. We are so proud of how far he has come however, the work has just begun. The PT and doctors have told him he must push himself each day and he cannot give up. The preliminary results of the liver biopsy revealed nothing new at this time and we are still waiting for the complete results. The stain slides will take a few more days and hopefully they will reveal the origin. Scotty will continue therapy on Saturday and will take Sunday off. He said he was really tired from his work - out today but will be ready to try more tomorrow ! At this time he is scheduled to have his first shower (since April 26th) on Monday! YAHOO ! The shower in his room comes with a seat and hand held shower. We are all looking forward to this for him !! As far as any more decisions about chemo nothing has been decided and the doctors will not decide this until Scotty is stronger and they have completed every test possible to find the origin. So the diagnosis remains CUP....Carcinoma of the liver and spine of unknown primary origin. I posted this in an earlier blog and it still has not changed.
Deborah is doing as well as to be expected at this time. She is very tired at night and we are so thankful for the help she has received from everyone. As summer approaches we will have to put our heads together to establish a routine for Noah as well as make it possible for Deborah to be able to go to the hospital. I told her tonight we will find ways and help to make it all work out. One Day At A Time.
Joyce Meyer stated in her daily devotional guide today that we must place our faith in God and through his power we can do whatever it is we need to do. She defines God's grace as God's power to help us do whatever it is we need to do. Our family has placed our faith and trust in God and we know that God is God, god is good, and God always does what is best for his people.
Please continue to pray for Scotty's strength, Deborah as she travels back and forth to Charlotte, my mom as she continues to help with Noah and for the doctors as they try to decide what is the best treatment for Scotty to fight this ugly disease.
Happy Memorial Day Weekend !
Deborah is doing as well as to be expected at this time. She is very tired at night and we are so thankful for the help she has received from everyone. As summer approaches we will have to put our heads together to establish a routine for Noah as well as make it possible for Deborah to be able to go to the hospital. I told her tonight we will find ways and help to make it all work out. One Day At A Time.
Joyce Meyer stated in her daily devotional guide today that we must place our faith in God and through his power we can do whatever it is we need to do. She defines God's grace as God's power to help us do whatever it is we need to do. Our family has placed our faith and trust in God and we know that God is God, god is good, and God always does what is best for his people.
Please continue to pray for Scotty's strength, Deborah as she travels back and forth to Charlotte, my mom as she continues to help with Noah and for the doctors as they try to decide what is the best treatment for Scotty to fight this ugly disease.
Happy Memorial Day Weekend !
Thursday, May 23, 2013
Scotty Takes A Spin !!!
Wednesday, May 22, 2013
Another Test !
May 22, 2013 Day 26...... The past 2 days have been a bit overwhelming for Deborah and Scotty.... Doctors coming and going, PT, OT, Social Workers, .......Nurses.....questions, diagnosis, more talking, more thinking, just a bit tiring and frustrating ! But here is where we are as of tonight !
Scotty had a liver biopsy this morning. They say tissue collected from the liver will reveal more information than the tumor that destroyed the L4 in his spine. Surgery is not an option as they have stuck to that sense day 1. Previous patients with this fracture have had surgery and still had pain. And we still do not have the origin and you don't open up the body when you do not know the origin.
The Hepatitis C is not a factor to worry about. So..... we now wait for the results of the biopsy which can take as long as 3 - 4 days. We are back to making those slides again!!
Now as far as PT and OT Scotty continues to work his arm muscles and leg exercises and he does really well with those. The BIG success today is he was able to sit on the side of the bed for 10 minutes. Yesterday he did two - 8 minutes sessions of sitting on the side of the bed. So as you can see this was a big step. Scotty will always have pain due to the fracture he just has to learn to handle the pain and be able to sit up for longer periods of time. They have agreed to let Scotty remain at the Rehab hospital until June 19th as long as he continues to improve. The PT and OT people are very good at what they do and they are working Scotty very hard to get him to his target date of sitting and walking with a walker.
He continues to have a not so good appetite and we continue to try and find things that might taste better. He had some of his co-workers stop by for a visit tonight and he was so glad to see them. He told me he was turning in early because he was a bit tired from the activities of the day.
Please continue to pray for Scotty , Deborah , and Noah as they continue to go through this journey..........
Matthew 6:34 "Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. " We are taking one day at a time !!!!!!!!!!!!!!
Scotty had a liver biopsy this morning. They say tissue collected from the liver will reveal more information than the tumor that destroyed the L4 in his spine. Surgery is not an option as they have stuck to that sense day 1. Previous patients with this fracture have had surgery and still had pain. And we still do not have the origin and you don't open up the body when you do not know the origin.
The Hepatitis C is not a factor to worry about. So..... we now wait for the results of the biopsy which can take as long as 3 - 4 days. We are back to making those slides again!!
Now as far as PT and OT Scotty continues to work his arm muscles and leg exercises and he does really well with those. The BIG success today is he was able to sit on the side of the bed for 10 minutes. Yesterday he did two - 8 minutes sessions of sitting on the side of the bed. So as you can see this was a big step. Scotty will always have pain due to the fracture he just has to learn to handle the pain and be able to sit up for longer periods of time. They have agreed to let Scotty remain at the Rehab hospital until June 19th as long as he continues to improve. The PT and OT people are very good at what they do and they are working Scotty very hard to get him to his target date of sitting and walking with a walker.
He continues to have a not so good appetite and we continue to try and find things that might taste better. He had some of his co-workers stop by for a visit tonight and he was so glad to see them. He told me he was turning in early because he was a bit tired from the activities of the day.
Please continue to pray for Scotty , Deborah , and Noah as they continue to go through this journey..........
Matthew 6:34 "Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. " We are taking one day at a time !!!!!!!!!!!!!!
Monday, May 20, 2013
"It's Complicated"
Monday May 20th...Day 24
IT'S COMPLICATED is the words that come to mind after the events of today. Scotty sat on the side of the bed for approximately 1 minute but that was all he could tolerate. "IT'S COMPLICATED" He did really well with arm therapy doing curls with a body bar and punching at a beach ball. He also completed his leg exercises. Deborah said he seemed a bit tired today and actually fell asleep during one of his sessions. The therapist said she didn't believe she had ever had that happen to her before ! We laughed and thought well you have never had anyone to work with like Scotty either ! Lunch came and he only ate a few bites. Hopefully he ate more at the evening meal. His sister Kathy was bringing him something to eat tonight.
Now for the complication: The doctors today reported that Scotty has Hepatitis C. They retested his blood again to make sure and it came back positive. So now we have another twist to the puzzle. According to the doctors this will have an impact on Chemo. So they are now trying to decide if they need a liver biopsy or not. As I said "IT"S COMPLICATED" Tomorrow they are suppose to meet with Deborah to reveal the plan. As far as Rehab goes his goal is to be able to walk with at least a walker before he comes home.
I have attached a link one of the Oncologist sent Deborah for her to read about Scotty's current diagnosis. They actually call it CUP...Cancer of Unknown Primary.
http://www.cancer.net/cancer-types/unknown-primaryhttp://www.cancer.net/cancer-types/unknown-primary
Please continue to pray for Scotty, Deborah, and Noah..........................
My daily devotion is listed below. I definitely feel we are in a trial !
http://purposedriven.com/blogs/dailyhope/index.html?contentid=12869
IT'S COMPLICATED is the words that come to mind after the events of today. Scotty sat on the side of the bed for approximately 1 minute but that was all he could tolerate. "IT'S COMPLICATED" He did really well with arm therapy doing curls with a body bar and punching at a beach ball. He also completed his leg exercises. Deborah said he seemed a bit tired today and actually fell asleep during one of his sessions. The therapist said she didn't believe she had ever had that happen to her before ! We laughed and thought well you have never had anyone to work with like Scotty either ! Lunch came and he only ate a few bites. Hopefully he ate more at the evening meal. His sister Kathy was bringing him something to eat tonight.
Now for the complication: The doctors today reported that Scotty has Hepatitis C. They retested his blood again to make sure and it came back positive. So now we have another twist to the puzzle. According to the doctors this will have an impact on Chemo. So they are now trying to decide if they need a liver biopsy or not. As I said "IT"S COMPLICATED" Tomorrow they are suppose to meet with Deborah to reveal the plan. As far as Rehab goes his goal is to be able to walk with at least a walker before he comes home.
I have attached a link one of the Oncologist sent Deborah for her to read about Scotty's current diagnosis. They actually call it CUP...Cancer of Unknown Primary.
http://www.cancer.net/cancer-types/unknown-primaryhttp://www.cancer.net/cancer-types/unknown-primary
Please continue to pray for Scotty, Deborah, and Noah..........................
My daily devotion is listed below. I definitely feel we are in a trial !
http://purposedriven.com/blogs/dailyhope/index.html?contentid=12869
Sunday, May 19, 2013
Rainy Day In The Big City
Sunday May 19th Day 23 - Bobby and I took off to see Scotty this morning after early Church. The only request he made was for us to bring him a strawberry milkshake. We got him a large one as we got closer to the Hospital and I am happy to report he finished almost all of it. He chose to drink it with his lunch hoping to make the lunch more appealing. Unfortunately the shake won out and he said the meat was too bland. He was in pretty good spirits but has redeveloped a cough and some chest congestion. He also seemed a bit uncomfortable but began to settle down once he received his pain medicine. We had another lesson on "THE PAIN SCALE" and I think he may have gotten it this time. Telling the Nurse he needs pain meds and that his pain level is a 1.5 is not the correct analysis !!! He reported to me that OT didn't go as well as he wanted it to yesterday. When he got to his sitting position on the side of the bed the BP shot up so they decided to put him back down and just do his leg and arm exercises. He is really doing well with them and has great strength in both legs and arms. I told him he needed to remember our motto ONE DAY AT A TIME ! If you visit him he likes to show you his exercise routines . I told him he will be good enough to make a video one day ! He continues to have a very warm body temperature. In fact I was wrapped in a blanket most of the visit and it felt like we were in the ARCTIC ! I told him next visit I would come with gloves and a North Face jacket ! LOL !!!
Many of you have asked just what Scotty does for a job. He is a District Supervisor for World Acceptance and has 11 offices he takes care of. Rock Hill, Ft. Mill, York, Gaffney, 2 in Spartanburg, Inman, Chesnee, Boiling Springs,Union, and Lancaster are the towns he covers. As you can see he has always been a man on the go !
I have gotten a text from Scotty this evening stating he will be back in action with OT at 9:00 a.m. Please say a special prayer for Scotty tonight for a successful OT session in the morning. Please continue to pray for Deborah as she tackles things at home with Noah as well as providing support and comfort for Scotty. Pray for the doctors as they make decisions concerning Scotty.
Rick Warren had an excellent devotional this week and I think he was speaking to me. God always knows was best for us and this devotional was a great inspiration to me. I have listed it below and if you have time take a minute to read.
Thanks again for everyone's support and prayers !!!
http://www.purposedriven.com/blogs/dailyhope/index.html?contentid=12865
Many of you have asked just what Scotty does for a job. He is a District Supervisor for World Acceptance and has 11 offices he takes care of. Rock Hill, Ft. Mill, York, Gaffney, 2 in Spartanburg, Inman, Chesnee, Boiling Springs,Union, and Lancaster are the towns he covers. As you can see he has always been a man on the go !
I have gotten a text from Scotty this evening stating he will be back in action with OT at 9:00 a.m. Please say a special prayer for Scotty tonight for a successful OT session in the morning. Please continue to pray for Deborah as she tackles things at home with Noah as well as providing support and comfort for Scotty. Pray for the doctors as they make decisions concerning Scotty.
Rick Warren had an excellent devotional this week and I think he was speaking to me. God always knows was best for us and this devotional was a great inspiration to me. I have listed it below and if you have time take a minute to read.
Thanks again for everyone's support and prayers !!!
http://www.purposedriven.com/blogs/dailyhope/index.html?contentid=12865
Saturday, May 18, 2013
Day 20, Day 21.......PT, OT, Radiation Graduation..........
Thursday May 20 and Friday May 21....... Scotty has been adjusting to the schedule of the Rehab Hospital. He has enjoyed meeting his new nurses, medical doctor and therapist. I think we now have gotten down what PT does and what OT does. All the names can be a bit confusing at times. Who is responsible for what! Scotty did complete all radiation treatments and was given a certificate of graduation ! He was thrilled to be finished with this process. We now wait for the radiation rays to do their thing on the tumor !
Scotty has made it to a sitting position 2 days in a row and briefly to a wheel chair. However, yesterday the blood pressure jumped up signaling the intense pain is present and they quickly got him back to bed. The process to get him to the sitting position actually takes longer than the time he stays in the chair. Yesterday Deborah and the therapist had to review the " number" system with Scotty when used to relate PAIN ! 10 being the highest and 1 being the lowest. With a BP pressure of 187 your pain number is not 4!! LOL !!! He so badly wants to sit we think he gets confused.
The dietician paid Scotty a visit asking him about the quality of their food. They had noticed he had lost a good bit of weight so they were concerned. So he was given a good old fashion hotdog, chips, and milk for lunch and said it was quite tasty. He now is encouraged to drink milkshakes and is given a protein shake with his meals. It is not uncommon with radiation to have a change in taste buds or appetite so we will just keep trying to find things that appeal to him.
Today is Saturday,May 18, Day 22 of the JOURNEY and Scotty will only have one session of PT this afternoon around 2:00. Deborah and Noah will visit Scotty this morning and he is expecting some of his colleagues to stop by as they return from Indianapolis later today. Each year Scotty's Employer honors their Employee's with a Celebration and this is the first year Scotty has missed in many, many years. He was so excited to get pictures some of the colleagues sent him as they traveled to Indianapolis. His company has been so good to him about visits and phone calls. His I Phone Charger has decided to quit working so Deborah is going to take him another one to charge his phone. We thank Apple for such a great device because this is the one thing that keeps Scotty in touch with the outside world and entertained.
As far as me I will travel to see my 3 month old Grandchild today in Sumter and will return to see Scotty tomorrow.I have promised him an "OUT OF HOSPITAL MEAL" !
Thanks to all of you for your continued prayers !
Scotty has made it to a sitting position 2 days in a row and briefly to a wheel chair. However, yesterday the blood pressure jumped up signaling the intense pain is present and they quickly got him back to bed. The process to get him to the sitting position actually takes longer than the time he stays in the chair. Yesterday Deborah and the therapist had to review the " number" system with Scotty when used to relate PAIN ! 10 being the highest and 1 being the lowest. With a BP pressure of 187 your pain number is not 4!! LOL !!! He so badly wants to sit we think he gets confused.
The dietician paid Scotty a visit asking him about the quality of their food. They had noticed he had lost a good bit of weight so they were concerned. So he was given a good old fashion hotdog, chips, and milk for lunch and said it was quite tasty. He now is encouraged to drink milkshakes and is given a protein shake with his meals. It is not uncommon with radiation to have a change in taste buds or appetite so we will just keep trying to find things that appeal to him.
Today is Saturday,May 18, Day 22 of the JOURNEY and Scotty will only have one session of PT this afternoon around 2:00. Deborah and Noah will visit Scotty this morning and he is expecting some of his colleagues to stop by as they return from Indianapolis later today. Each year Scotty's Employer honors their Employee's with a Celebration and this is the first year Scotty has missed in many, many years. He was so excited to get pictures some of the colleagues sent him as they traveled to Indianapolis. His company has been so good to him about visits and phone calls. His I Phone Charger has decided to quit working so Deborah is going to take him another one to charge his phone. We thank Apple for such a great device because this is the one thing that keeps Scotty in touch with the outside world and entertained.
As far as me I will travel to see my 3 month old Grandchild today in Sumter and will return to see Scotty tomorrow.I have promised him an "OUT OF HOSPITAL MEAL" !
Thanks to all of you for your continued prayers !
Wednesday, May 15, 2013
"Scotty Is On The Move"
Tuesday May 14 - Sorry I did not have time to post last night. Jacob and I stayed with Scotty for a while and got back a little late. We took Scotty Chick-Fil -A and he was very excited to have something to eat from the outside world ! We had a great visit and we talked about what was going to happen today. He did hear from the radiologist that the tumor appeared to be showing signs of shrinkage. Halleluiah FOR THAT !!! He continued with PT and OT and had radiation treatment #8.....Now for the GOOD NEWS !!
Wednesday May 15th, Day 19 ........... Scotty has officially changed residency and he is now in the Charlotte Rehabilitation Hospital right beside the Hospital. YAHOO!!! God is GOOD ! You actually have to park in the same parking deck that you use when visiting the hospital. Deborah and I were so hoping we could be out of the parking deck but nope we will continue to dodge big SUV's and settle for the 3rd deck !! We never get the first floor !! They got Scotty settled in his new room 2306 and met the very nice staff. Scotty said everyone had been very nice to him so far. Shortly after getting settled in they had to take him for radiation treatment #9 . They invited Deborah to go along so off she went with Scotty and 2 newbies !! Well apparently this was quite an entertaining trip for Deborah but I am not so sure Scotty enjoyed the ride. At one point Deborah asked the 2 individuals if they needed a GPS !! They apparently got off on a wrong floor and headed to unknown parts. They finally received some directions and proceeded through a tunnel which led them to the correct radiation room. They sent some more experienced help to retrieve Deborah and Scotty after his treatment and she suggested they give guided tours for the newbies !! LOL !! She also got to watch how the radiation machine works.
Scotty called to tell me tonight he had a nice room with a full bath and a real toilet ! I told him I hoped it was real !! If you could have seen the facilities in his other room you would understand his comment ! He also gave me his schedule. Wanted to make sure I would put it in the Blog.
8:00 - He has speech evaluation - Well I told him I thought he would pass that with flying colors ! Even though they told him when they did the MRI of his head that there wasn't much in there ! (Deborah actually told the Doctor that when they were reporting the negative results)
10:00 - 11:00 OT Evaluation and Bath Evaluation ( I told him they may use a hose to wash him down now )
11:30 - OT Dress He finally will have real clothes on !! (No more just boxers , preppy hospital gowns or the cute Spongebob yellow footies)
1:00 - PT
1:30 - PT
2:00 - PT
They have him on a pain patch and something by mouth to help control the pain. As you can see he will have a full day tomorrow and he said he is ready. Please pray he can be successful and not get frustrated. He has to practice patience! He will also have radiation #10 !
As for Deborah she continues to handle things in a Deborah kind of way and is so thankful for what everyone has chipped in to do for her. The meals are fantastic for her and her yard assistance has been awesome.Noah had a play date with Connor Lee this past Saturday and is still talking about the trip.
As I close tonight I have a verse that I think sums up how Deborah reminds us each day on how we are to approach Scotty's journey !
Matthew 6:34 "Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. " We are taking one day at a time !!!!!!!!!!!!!!
Wednesday May 15th, Day 19 ........... Scotty has officially changed residency and he is now in the Charlotte Rehabilitation Hospital right beside the Hospital. YAHOO!!! God is GOOD ! You actually have to park in the same parking deck that you use when visiting the hospital. Deborah and I were so hoping we could be out of the parking deck but nope we will continue to dodge big SUV's and settle for the 3rd deck !! We never get the first floor !! They got Scotty settled in his new room 2306 and met the very nice staff. Scotty said everyone had been very nice to him so far. Shortly after getting settled in they had to take him for radiation treatment #9 . They invited Deborah to go along so off she went with Scotty and 2 newbies !! Well apparently this was quite an entertaining trip for Deborah but I am not so sure Scotty enjoyed the ride. At one point Deborah asked the 2 individuals if they needed a GPS !! They apparently got off on a wrong floor and headed to unknown parts. They finally received some directions and proceeded through a tunnel which led them to the correct radiation room. They sent some more experienced help to retrieve Deborah and Scotty after his treatment and she suggested they give guided tours for the newbies !! LOL !! She also got to watch how the radiation machine works.
Scotty called to tell me tonight he had a nice room with a full bath and a real toilet ! I told him I hoped it was real !! If you could have seen the facilities in his other room you would understand his comment ! He also gave me his schedule. Wanted to make sure I would put it in the Blog.
8:00 - He has speech evaluation - Well I told him I thought he would pass that with flying colors ! Even though they told him when they did the MRI of his head that there wasn't much in there ! (Deborah actually told the Doctor that when they were reporting the negative results)
10:00 - 11:00 OT Evaluation and Bath Evaluation ( I told him they may use a hose to wash him down now )
11:30 - OT Dress He finally will have real clothes on !! (No more just boxers , preppy hospital gowns or the cute Spongebob yellow footies)
1:00 - PT
1:30 - PT
2:00 - PT
They have him on a pain patch and something by mouth to help control the pain. As you can see he will have a full day tomorrow and he said he is ready. Please pray he can be successful and not get frustrated. He has to practice patience! He will also have radiation #10 !
As for Deborah she continues to handle things in a Deborah kind of way and is so thankful for what everyone has chipped in to do for her. The meals are fantastic for her and her yard assistance has been awesome.Noah had a play date with Connor Lee this past Saturday and is still talking about the trip.
As I close tonight I have a verse that I think sums up how Deborah reminds us each day on how we are to approach Scotty's journey !
Matthew 6:34 "Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. " We are taking one day at a time !!!!!!!!!!!!!!
Monday, May 13, 2013
Can't Keep A Good Man Down !
May 13th........ Today started off quite uneventful for Scotty . His radiation was pushed back due to a malfunction and there were no visits from any of the "team doctors". AND then............PT arrives and tries to start his work-out and as he started sitting up the room began to spin. They decided to rest and let the room settle. Scotty was thinking this is new and I know I am not on a ride at Carowinds with Noah so I better stop.! Once things settled down he completed his sitting up and was able to stand again taking a few baby steps with the walker. One to the right, back to the middle, and one to the left. OT comes in and teaches him how to position his legs and roll to a sitting position on the side of the bed. Of course he has his brace on when doing therapy and he also receives an injection before PT or OT comes to help with the pain. Scotty was excited to report to me that he completed 2 workouts. He also has been doing his arm and leg work-outs in bed to help maintain strength. He did receive his radiation treatment. 7 down and 3 to go !
They have removed his antibiotic drip and have started giving his antibiotic by mouth. At this time he has no IV line and that he is thankful !
Mother's Day was quite relaxing for Deborah and Noah. Mom, Deborah and I went out for our traditional Mama - Daughter lunch while Jacob stayed with Noah. Later that day Deborah tackled the shrubbery which I am happy to report she did not scalp them too bad ! Ha ! Ha !
As I close tonight one of my favorite verses comes to mind I will share with each of you
Philippians 4:13 I can do all things through Christ who strengthens me........
Please continue to keep Scotty, Deborah, Noah and all of us in your prayers.....
They have removed his antibiotic drip and have started giving his antibiotic by mouth. At this time he has no IV line and that he is thankful !
Mother's Day was quite relaxing for Deborah and Noah. Mom, Deborah and I went out for our traditional Mama - Daughter lunch while Jacob stayed with Noah. Later that day Deborah tackled the shrubbery which I am happy to report she did not scalp them too bad ! Ha ! Ha !
As I close tonight one of my favorite verses comes to mind I will share with each of you
Philippians 4:13 I can do all things through Christ who strengthens me........
Please continue to keep Scotty, Deborah, Noah and all of us in your prayers.....
Sunday, May 12, 2013
Busy Busy Days
Day 16 ! As of today May 12th Scotty remains on the 9th floor at CMC main. Since my first post many days have past that have been filled with test, consultations, test, more consultations, more test, more test, many miles back and forth on 77, tears, fears, laughter, prayers, anxiousness, and feelings of exhaustion. We have tried to listen to all the medical terminology and grasp what they are actually telling us and at the same time keep Noah's life as normal as possible. At this time Scotty has had MRI's, PET Scans, CT Scans, Colonoscopy, Endoscopy, and 6 radiation treatments to his spine. The official diagnosis is Metastatic Carcinoma of the spine and liver with unknown primary origin. What this means is that all other test have been clear and he shows no signs of cancer cells in any other parts of his body. Medical research states that this type of cancer does not originate in the parts where it appears. Scotty has been under the care of several doctors who have been very sincere and genuine when talking to Deborah or myself and you can tell they have Scotty's best interest in their hands. There is the Internist, Medical Oncologist, Radiation Oncologist, Orthopedic Oncologist, Gastroenterologist, and the Physical Therapy that are members of Scotty's team. And yes keeping the names straight was a bit of a challenge at first but we seem to have their names and faces matched up correctly. On a side note Deborah has made it very clear to them they should treat Scotty as if he was their best friend ! That statement has gotten a big smile from them. And those of you that know my sister can visualize her saying that to them with her candid smile and few chuckles after making the statement.Scotty has developed some pneumonia but has been responding to the antibiotic drip they have been giving him. He is also doing simple breathing treatments that he finds satisfaction in when he gets his smiley faces when he does them !
Scotty will get 4 more radiation treatments this week and will continue with physical therapy. The goal for him is to be able to sit on the side of the bed, stand, and walk with as little of pain as possible. Today he actually was able to take 2 steps forward and 2 steps back with a walker, This was HUGE. The L4 fracture he has that was caused by the tumor is the most painful fracture you can have. He will always have some pain but hopefully the radiation will help relieve him of the severe pain he has been experiencing. Rehab is in Scotty's future but we donot know when this will occur. He will do that at the Rehab hospital on the CMC main campus.
As far as Deborah she is now out on leave from her class and is handling things very well. She tries to take Noah to school each day and then heads up to the hospital . Our mom picks him up each day and takes him home. Grandma is a blessing to us all in many, many ways ! I take the afternoon shifts and some day shifts to give Deborah some time away from the Hospital. Others have filled in for me as well to give me some time as well. The outpouring care and concern from her neighbors, friends, family members and colleagues have been phenomenal and have provided the strength we all need to cope with each day. We are truly blessed and grateful for all the help. We feel your prayers and feel that Scotty is truly in God's hands.
On a funny side one of Scotty's biggest concerns has been his hair and making sure his teeth are brushed ! Go figure ! So if you go visit tell him his hair looks nice or that his teeth look really really clean ! And his breath smells good ! LOL !! Thanks to good neighbor Adam for providing him with a USC hat. He wears it when he thinks someone is coming to see him or his hair doesn't look good.
Deborah had her first experience tackling trimming shrubbery in the back yard around the pool. She did a pretty good job but for those that know Deborah she doesn't do yard work ! Ha ! Ha !That was always Scotty's hobby and would not allow anyone else to do anything.
I created this blog to inform you of Scotty's journey and to provide a sense of service for Deborah. Scotty calls me the official "note taker". I am keeping a journal for them so one day Scotty can look back and see what all he went through and survived. I plan on updating each day but sometimes the days are just not long enough. God Bless all of you and continue to pray for my dear brother-in- law whom we all love very dearly.
Scotty will get 4 more radiation treatments this week and will continue with physical therapy. The goal for him is to be able to sit on the side of the bed, stand, and walk with as little of pain as possible. Today he actually was able to take 2 steps forward and 2 steps back with a walker, This was HUGE. The L4 fracture he has that was caused by the tumor is the most painful fracture you can have. He will always have some pain but hopefully the radiation will help relieve him of the severe pain he has been experiencing. Rehab is in Scotty's future but we donot know when this will occur. He will do that at the Rehab hospital on the CMC main campus.
As far as Deborah she is now out on leave from her class and is handling things very well. She tries to take Noah to school each day and then heads up to the hospital . Our mom picks him up each day and takes him home. Grandma is a blessing to us all in many, many ways ! I take the afternoon shifts and some day shifts to give Deborah some time away from the Hospital. Others have filled in for me as well to give me some time as well. The outpouring care and concern from her neighbors, friends, family members and colleagues have been phenomenal and have provided the strength we all need to cope with each day. We are truly blessed and grateful for all the help. We feel your prayers and feel that Scotty is truly in God's hands.
On a funny side one of Scotty's biggest concerns has been his hair and making sure his teeth are brushed ! Go figure ! So if you go visit tell him his hair looks nice or that his teeth look really really clean ! And his breath smells good ! LOL !! Thanks to good neighbor Adam for providing him with a USC hat. He wears it when he thinks someone is coming to see him or his hair doesn't look good.
Deborah had her first experience tackling trimming shrubbery in the back yard around the pool. She did a pretty good job but for those that know Deborah she doesn't do yard work ! Ha ! Ha !That was always Scotty's hobby and would not allow anyone else to do anything.
I created this blog to inform you of Scotty's journey and to provide a sense of service for Deborah. Scotty calls me the official "note taker". I am keeping a journal for them so one day Scotty can look back and see what all he went through and survived. I plan on updating each day but sometimes the days are just not long enough. God Bless all of you and continue to pray for my dear brother-in- law whom we all love very dearly.
Sunday, May 5, 2013
The beginning ...............
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