Wednesday, August 14, 2013

The Journey Takes A New Path Of Focus


August 14, 2013 Day 110

I have spent the past 24 hours trying to decide how to post this update and what to call it.  I kept thinking about the conversation Scotty and I had in the car as I drove him home from the hospital and it hit me what I needed to title this entry. After all the doctors had given us all their medical opinions and diagnosis on Monday, Scotty decided that his path with this illness needs to focus on QUALITY and COMFORT for the duration of this illness. On Monday the Radiology Oncologist gave him what he called one last "supper duper" dose of radiation to that evil growth on his spine that has decided to grow and completely disintegrate the L4. That is why the onset of excruciating pain returned. He can have no more because it would damage the nerves and cord that would create a whole bunch of ugliness !They finished up his dose of vancomycin and put us in contact with Hospice and Community Care in Rock Hill. Deborah and I met with the counselor on Tuesday morning at the Wayne T. Patrick Center and she( the counselor )went to meet Scotty very soon after we left the center. They had a great visit and from there the wheels started turning. By 6:30 pm Scotty and I were on our way out of the hospital and he was a very Happy Man to be going home. The nurses on the 4th floor said they thought he was skipping one time when they looked up ! His entire attitude has changed and he is a much more relaxed and content person. When transport arrived he was the most happiest I have ever seen him ! I did tell him he had to stay in the wheel chair while I went to get the car. On the last dismissal when I drove up he was standing up helping the security guard direct traffic !! I was lucky he didn't get hit by some maniac !  When we arrived home two intake nurses were already at the house to get Scotty started and of course get the proper paper work filled out. He had a visit today with his assigned nurse and a social worker as well. The support, care, and comfort we have already gotten has begun to provide the much needed assistance we were needing to continue our travels through this journey. Scotty is moving very well around the house and he has found something to eat that really taste good to him, French Toast and BLT's. Bobby went over at lunch today and took him a BLT from Southern Salads.  They had good conversation before Bobby had to return to work. I think tomorrow is cheeseburger day for the both of them ! Scotty is busy looking at some business stuff and trying to plan a small trip to see some of his relatives from his Dad's side of the family. His brother Phillip is trying to arrange the time to take him. He is enjoying the flowers around the house and is making sure the kitchen stays clean. He loves to wash dishes!!
 LOL.....

As of today Noah will be attending Rawlinson Road Middle School. We had a very positive meeting with a great group of people who want to help Noah with his transition to 6th grade. I can honestly say our prayers have been answered for him at this time. This is a big relief for Deborah. TLC is helping Deborah find someone to help get Noah to school each day and our Mom will pick him up for now until we can make other arrangements so she can have some time off when she needs it.

Deborah went back to work today and received a very warm welcome by her colleagues. They have been so good to her and she enjoyed planning and focusing on teaching which is what she truly loves to do !

As I close tonight I ask that you continue to place Scotty, Noah, Deborah, and all of our family in your prayers as we begin to travel down the path of Quality and Comfort. Scotty has placed himself in the hands of our dear savior and he knows God is taking care of him.

Romans:8:28  "And we know that in all things God works for the good of those who love him, who have been called according to his purpose."

Isaiah: 41:10 "So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand."