Saturday August 10, 2013 Day 106
Sorry I am just getting caught up on my post but we have been a very busy family trying to meet the day to day needs and bumps through this day to day journey. Scotty was released from the hospital on Wednesday with a pic line inserted in his right arm to enable him to continue his vancomycin through an IV at home hoping to rid his body of the pneumonia in the lungs which was diagnosed as MSRA. A swallowing test he took on Monday revealed his thin liquids were not flowing to the stomach therefore he now has to add a substance called thicket to his thin liquids before he drinks them. The liver diseases he has will cause this to happen. They affect the muscles in the esophagus. They diagnosed the rash he had as fungus and he received an external creme for them which seemed to be working. Swelling had started in his legs and feet but they gave him a shot of Lasik and said that should take care of that. The home health care team had to change due to the assignment of a speech person. Scotty, Deborah, and myself were trained on Wednesday night on how to do the IV. That was a long day and night ! On Thursday Scotty's legs continued to swell and they started weeping. He also started experiencing more back pain that he had not had in many weeks. By Friday morning the pain had escalated and he was unable to get out of the bed. We had to call EMS to help us and to transport him back to CMC Main. Deborah was treated to an ambulance ride and enjoyed her ride with the driver. She said he was very caring and was very concerned about Scotty. We spent several hours in the Emergency Room and were so fortunate to find his team doctors there ready to care for Scotty. They gave him some morphine in the ambulance and that reduced the pain once it entered his system. We had to take a room on the 10th floor but was moved today to the 4th floor which serves oncology patients. Right back where we have been several times before. An MRI was taken this am and blood work was done yesterday. His ammonia levels are elevated so they have started him on meds for that. Palliative care has added another pain medication for him to help with some of the break through pain. The MRI revealed the tumor in his back has enlarged and they will discuss on Monday the possibility of doing more radiation treatments. There was also evidence of some muscle twitching in his legs as well as some interval numbness in his thighs. All of this is probably due to the growth in the tumor. The swelling has gone down in his legs but they are still weeping and some form of rash has developed on both legs. He was able to get a shower on his own today and move about the room with his walker.
Needless to say this has been a BIG disappointment for Scotty and we are praying he can bounce back with the determination to get stronger again. I must say we have all been affected by these recent chain of events and have had to really rely on our faith these past few days. We know God is in control and he knows what is best for his people. He will not let us down in times of trials and suffering and we must go to his word in difficult times such as these. As believers we know there is abundant power in prayer and we are asking everyone to pray for Scotty to physically and mentally be able to overcome these past few days. Please pray for Deborah's strength as she handles all the household duties and business, Noah and his needed issues, and her preparation to return to work this week. Please pray for her safe travels to and from Charlotte. And please pray for the rest of us as we continue to provide support and care for Scotty, Noah,and Deborah.
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